JHD Forum http://www.jhdfamilies.co.uk/jhdforum This is an XML content feed of; JHD Forum : Last 10 Posts Mon, 06 Feb 2012 08:10:53 +0000 Sat, 14 Jan 2012 14:51:11 +0000 http://blogs.law.harvard.edu/tech/rss Web Wiz Forums 8.04 30 www.jhdfamilies.co.uk/jhdforum/RSS_topic_feed.asp JHD Forum http://www.jhdfamilies.co.uk/jhdforum/forum_images/web_wiz_forums.gif http://www.jhdfamilies.co.uk/jhdforum JHD Forum : RIP Kathleen http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=168&PID=596#596 Author: Paula B
Subject: RIP Kathleen
Posted: 14 Jan 2012 at 2:51pm

Here is another news story covering her passing:

http://www.detroitnews.com/article/20120113/METRO/201130365/1409/METRO/Taunted-girl-Huntington-s-disease-dies

Edited by Paula B - 14 Jan 2012 at 2:51pm]]> Sat, 14 Jan 2012 14:51:11 +0000 http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=168&PID=596#596 JHD Forum : RIP Kathleen http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=168&PID=595#595 Author: Paula B
Subject: RIP Kathleen
Posted: 14 Jan 2012 at 12:32am

Some of you may remember the little girl in the USA who was bullied by her neighbours.Recently she passed away aged just 9 years old.

http://www.myfoxdetroit.com/dpp/news/local/kathleen-edward-loses-battle-with-huntington%27s-disease-dies-at-age-9-20120112#.Tw7sCiYAaOs.facebook

This is as close as I can get the link on here for some reason.?Please type in Kathleen Edward on the search bit after this,first story up.Or the link has worked properly on the HDUK message bored,JHD section.

Edited by Paula B - 14 Jan 2012 at 4:31pm]]> Sat, 14 Jan 2012 00:32:15 +0000 http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=168&PID=595#595 JHD Forum : Mia a prom queen for a night! http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=167&PID=594#594 Author: Paula B
Subject: Mia a prom queen for a night!
Posted: 10 Jan 2012 at 10:10pm

http://lacrossetribune.com/news/year-old-is-queen-for-a-night/article_5fc58620-6263-11e0-9bd2-001cc4c002e0.html]]> Tue, 10 Jan 2012 22:10:35 +0000 http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=167&PID=594#594 JHD Forum : Rachel growing up with JHD http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=164&PID=593#593 Author: coraljoy
Subject: Rachel growing up with JHD
Posted: 07 Jan 2012 at 7:09am

Hi Paula , just loved the youtube pictures of your beautiful daughter Rachel, and the lovely words, i need tissues, thankyou for sharing that with me, and lots of love and positive thoughts to you and family.xo ]]> Sat, 07 Jan 2012 07:09:07 +0000 http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=164&PID=593#593 JHD Forum : HD Youth Organisation web site coming soon! http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=166&PID=592#592 Author: Paula B
Subject: HD Youth Organisation web site coming soon!
Posted: 29 Dec 2011 at 3:00pm

http://www.youtube.com/watch?v=72TzIdcZ6XE&feature=colike

A website dedicated to young people affected by HD in some way.]]> Thu, 29 Dec 2011 15:00:43 +0000 http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=166&PID=592#592 JHD Forum : JHD weekend 2012! http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=165&PID=591#591 Author: HelenS
Subject: JHD weekend 2012!
Posted: 07 Dec 2011 at 3:25pm

Dear all,

I just wanted to let you know that booking forms for the JHD family weekend next year are now available!! The weekend will be the 8th - 10th June 2012, and is at the Calvert Trust in the Lake District again this year.

I'm going to send out booking forms to those who have been before, so if you've been you should get one automatically but do let me know if you don't.

If you haven't been before, then you can always get in touch with me and I can e-mail / post one to you - my contact details are 01279 507656 or helen.santini@hda.org.uk. If you have any questions at all about the weekend, then please get in touch!]]> Wed, 07 Dec 2011 15:25:56 +0000 http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=165&PID=591#591 JHD Forum : Rachel growing up with JHD http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=164&PID=590#590 Author: Paula B
Subject: Rachel growing up with JHD
Posted: 07 Dec 2011 at 11:11am

http://www.youtube.com/watch?v=RKzuSC4SqQw

A tough one to make looking back at all the pictures of how she was before jhd took over her life.]]> Wed, 07 Dec 2011 11:11:41 +0000 http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=164&PID=590#590 JHD Forum : 'Guests' postings suspended http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=162&PID=589#589 Author: coraljoy
Subject: 'Guests' postings suspended
Posted: 01 Dec 2011 at 7:26am

Hi Patrick, so good to see that i can log in to site. I hope all is going ok with you and family, and the site is not been mucked around to much. hi to all the other users, the friendly ones...
Been to new zealand, and had a great time, visit my family and meeting little ones,,,,the new additions which was just fantastic, the weather was a typical nz style, cool , windy, mostly , cloudy, with a bit of sunshine. It was very pleasant. really needed the break, it was great too as jade and shane came also, so that was a big plus, talk more about the later. came back to ozzie , and its been 32, a bit of a shock, at least its a bit cooler now its raining.
Hope to chat to you all a bit more, i have a bit more free time on my hands now. its only 4 weeks til xmas an love the catchuing up with friends and family , but cant stand, the crowds and the traffic. Not going to far from home this year.  love to chat, on a differnce time zone , ,,,,,,, can i talk on chat, and the messeage gets to you all instantly , if you are on chat too. ? lots of love to you all, and hope to chat soon. take care,  
I have a quote for you: Since letting go is a deeply personal choice, you are going to have to be your own Teacher. The proess takes place on every level=Physical,Mental, and Emotional. It is from a book called healyourself heal your spirit. xo
]]> Thu, 01 Dec 2011 07:26:33 +0000 http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=162&PID=589#589 JHD Forum : 'Guests' postings suspended http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=162&PID=587#587 Author: Patrick Smith
Subject: 'Guests' postings suspended
Posted: 10 Nov 2011 at 12:03pm

It's thanks in the main to your good work Paula - keeping an eye on things for me on the forum - that made me decided to require visitors to log in.

It makes you wonder if these low-life bottom-feeders have families, brothers, sisters or even children of their own to be able to behave this way.

Hopefully we may now see the back of them for good Paula.
]]> Thu, 10 Nov 2011 12:03:45 +0000 http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=162&PID=587#587 JHD Forum : 'Guests' postings suspended http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=162&PID=586#586 Author: Paula B
Subject: 'Guests' postings suspended
Posted: 10 Nov 2011 at 11:08am

Good idea PatrickWink]]> Thu, 10 Nov 2011 11:08:57 +0000 http://www.jhdfamilies.co.uk/jhdforum/forum_posts.asp?TID=162&PID=586#586