info@jhdfamilies.co.uk

This website is for all families and individuals who are living with, affected by or involved in any way with Juvenile Huntington's Disease (JHD).

This site was inspired by the collective and shared experiences of the families and all those involved in organising and contributing to these events over the past five years. They make these Family Weekends the great success that they are.

Organised by the UK's Huntington's Disease Association (HDA) and sponsored by the The Roald Dahl Foundation, Juvenile Huntington's Disease Family Weekends are a great moral support to all our families. For all their caring, support and hard work, we thank them all.

View 2006 Photo Album View 2007 Photo Album View 2008 Photo Album View 2009 Photo Album

'Discussion forum'   Our 'Discussion forum' aims to create a community where families, friends, professionals, and anyone interested in the issues raised by Juvenile Huntington's Disease.

The forum gives users the opportunity to:

bullet  keep in touch
bullet  send private messages
bullet  ask questions
bullet  share experiences
bullet  offer tips, help and advice to others
bullet  give / receive moral support
bullet  submit suitable material for inclusion

 

click on the image above to visit or join the Forum